Free Support Available for Ovarian Cancer and Prostate Cancer Patients

September 2, 2010

September is both Ovarian Cancer Awareness Month and National Prostate Cancer Awareness Month.

CancerCare partnered with L’Oreal Paris and Ovarian Cancer Research Fund (OCRF) to create a free telephone counseling and referral service for women diagnosed with ovarian cancer. 

Launched one year ago, The L’Oreal Paris OCRF Hopeline has proven to be a great source of support for many women facing an ovarian cancer diagnosis. The Hopeline is staffed by professional oncology social workers and operates Monday through Friday, 9 a.m. to 5 p.m. Eastern Time.

Call the L’Oréal Paris OCRF Hope Line at 877-OV-HOPE-1 (877-684-6731).

CancerCare responded to the needs of men facing prostate cancer by publishing two new fact sheets: Caring for Your Bones When You Have Prostate Cancer and Prostate Cancer: What You Should Know About Screening and Diagnosis. 

For more resources on these cancers, including additional publications, support groups and archived connect education workshops, visit the diagnoses pages on our website.

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New Survey Seeks Patients’ Insights About Living with Metastatic Breast Cancer

July 20, 2010

Living Beyond Breast Cancer (LBBC) and the Metastatic Breast Cancer Network (MBCN) have partnered with Genentech to conduct a 10-question survey to better understand how people diagnosed with metastatic breast cancer identify with and feel about living with the illness.

Genentech will donate $5 for each survey completed to programs and services designed specifically for metastatic breast cancer patients.  Survey results will be used to produce video and media materials that will be distributed on Metastatic Breast Cancer Awareness Day (October 13).

The survey is open and available online until August 31. Please visit facesofmbc.org or text MBC to 74471 to share your story.

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Three New Studies Seek Men, Women Diagnosed with Breast or Prostate Cancer

June 7, 2010

Researchers at the University of Colorado, Mount Sinai School of Medicine, and UCLA have joined with the National Cancer Institute’s Cancer Information Service to investigate how to better provide information about the best treatments possible for patients affected by breast cancer and prostate cancer

Each of the three studies are seeking participants, who will receive a variety of  types of  educational information about their diagnosis, and will then be asked to participate in two brief telephone interviews with researchers over a period of nine months.  All information is completely confidential.

Healing Choice for Prostate Cancer is for men who have been recently diagnosed with prostate cancer, but have not yet begun any treatment. The goal is to help men decide on the treatment that’s right for them.

Healing Choices for Women with Breast Cancer is for women who have been recently diagnosed with breast cancer, but who have not yet begun any treatment. The study’s purpose is to determine the best way to provide treatment information to women, and whether the information helped them in making decisions about their treatment.

Pathways to Recovery after Breast Cancer Treatment is for women who are just completing treatment for breast cancer or have completed treatment within the past six months. The goal is to find out the best way to help women get information about life after breast cancer treatment.

To find out if you are eligible to participate in any of these studies, please call 1-866-258-7981.

CancerCare offers free, professional support services to anyone affected by breast cancer or prostate cancer.  People affected by either diagnosis may qualify to receive up to $10,000 per year in co-payment assistance through the CancerCare Co-Payment Assistance Foundation.

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Coping with Hair Loss from Chemotherapy

December 14, 2009

In a recent posting to the New York Times health blog “Well,” oncology nurse Theresa Brown relates her experiences in helping two patients shave their heads when the gradual hair loss from chemotherapy became intolerable.

The stories she shares reveal, in her words, “how difficult it can be to lose your hair as a by-product of saving your own life.” Of course, each patient reacts to treatment-related hair loss in their own personal way, as reader’s comments on the blog illustrate:

“I had chemo last year and loved being bald. My son and I went together to have our heads shaved and our local paper made a video of it,” says one woman. Another writes, “I lost my hair twice due to different treatment regimens and each time there were emotions associated that I did not expect.”

CancerCare social workers offer the following tips to individuals coping with hair loss:

  • Buy a wig before all of your hair falls out. This way, you will have a good match to your own hair color.
  • Get a professional fitting. There are full-service wig salons that fit and style wigs.
  • Find out if your health insurance company covers the cost of wigs. If so, remember to save your receipt.

For additional tips, read CancerCare’s fact sheet, “Tips for Managing Hair Loss.”

One commentator to the “Well” blog offers the following helpful advice to parents with cancer who are contemplating going bald:

“Parents with school aged children should talk to their kids and set expectations with them. Our kids were fine with their Mom being bald AT HOME, but when she was at school they requested that she wear a wig so she would look normal.”

Do you have some tips of your own? We invite you to share them with our readers by leaving a comment on this page.

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Avon Foundation Awards $1.125 Million Grant to CancerCare to Help Women with Breast Cancer

October 14, 2009
CancerCare's Jane Levy (center) with Carol Kurzig, president of the Avon Foundation for Women and financial expert and Avon Foundation Special Ambassador Suze Orman.

CancerCare's Jane Levy (center) with Avon's Carol Kurzig and financial expert Suze Orman, accepting a $1.125 million grant award, made possible by participants in Avon's annual Walk for Breast Cancer.

 CancerCare was among 8 non-profit organizations receiving substantial grants this past weekend from the Avon Foundation for Women to support direct services and care for women facing breast cancer.

The grant funds were made possible by the more than 4,000 men and women, including hundreds of breast cancer survivors, who walked in the seventh annual Avon Walk for Breast Cancer on Oct. 10 and 11 in New York City and raised a record $8.7 million to support a variety of health care non-profits that assist women facing breast cancer.

The Walk is a noncompetitive event, in which participants collect pledges for completing either a walking marathon (26.2 miles) or a marathon and a half (39.3 miles), split over 2 days. 

The Avon Foundation is a long-time supporter of CancerCare’s free counseling, education and financial assistance programs for underserved women with breast cancer who live in New York City and the tri-state area.

CancerCare received nearly $1.13 million — the second largest grant award presented — during the celebratory Closing Ceremony of the Walk. Suze Orman, financial expert and Special Ambassador for the Avon Foundation for Women, and Carol Kurzig, President of the Avon Foundation, were on hand to present the ceremonial check to CancerCare Director of Patient Services Jane Levy.

To date, Avon’s support has allowed CancerCare to provide its free, professional services to more than 39,000 low-income women facing breast cancer.

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Cervical Cancer: To Vaccinate — or Not?

September 10, 2009

A few weeks ago, I received a phone call from a 42-year-old mother in Oklahoma who had been living with cervical cancer for the past two years. Her call, however, was not about her own situation but about whether she should have her 13-year-old daughter get an HPV vaccination.

Much has been written recently about the positive impact of HPV vaccinations in preventing cervical cancer. The human papilloma virus, or HPV, is the most common sexually transmitted infection, usually occurring when a person first becomes sexually active. There are many HPV strains, which can be spread simultaneously; some are related to genital warts, others to cancers. HPV has been found to be responsible for a majority of cervical cancers and is also implicated as the cause of some oropharyngeal cancers, about half of all penile cancers, and most anal cancers. Although the body’s immune system clears up most HPV infections, about 10% remain, which can then lead to a disease state.

Yet, controversy persists about the effectiveness of HPV vaccinations as a preventive measure against cancer, particularly cervical cancer. The debate involves how the vaccine is marketed and the risk of side effects outweighing its potential to protect girls and young women from developing cancer later in life. Some critics accuse the pharmaceutical industry of creating a “market out of thin air” and question the ethics of claiming that HPV vaccines guard against cancer, as opposed to being a vaccine against a sexually transmitted disease.  The debate continues.

These were the issues weighing on the mind of my caller that day. Often, the kind of counseling an oncology social worker provides is supporting people caught in the midst of this kind of debate, weighing conflicting and sometimes contradictory information, and then helping that individual decide the best course of action to take for his or her situation. This is so true of this topic. We can help you get the information you need to make the right decision for you. Call us at 1-800-813-HOPE (4673).

[NOTE: On Sept. 9, a U.S. Food and Drug Administration (FDA) panel of independent medical experts endorsed the use of a second vaccine -- Cevarix -- to protect against cervical cancer in women; and to expand the use of the first approved vaccine, Gardasil, in preventing genital warts in males. The panel's endorsement is expected to lead to the FDA's approval of Cevarix. Gardasil was approved in 2006. Source: The Wall Street Journal]

William Goeren, LCSW-R, is a professional oncology social worker and director of quality assurance of the social services division of CancerCare.

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New Toll-Free “Hope Line” Helps Women Facing Ovarian Cancer

September 1, 2009

CALL 1-877-OV-HOPE-1 (877-684-6731)

While any cancer diagnosis is a frightening and stressful experience, when the diagnosis is ovarian cancer, too many women have no place to turn for help in coping with their situation. While five-year survival rates exceed 90 percent in early-stage diagnoses, there is still no effective early-stage test for the disease, which often is not diagnosed until it reaches an advanced stage, when it is far more difficult to treat successfully.

Now CancerCare and its partners, L’Oréal Paris and the Ovarian Cancer Research Fund, have launched the L’Oreal Paris OCRF Hope Line, a free telephone counseling and referral service staffed by CancerCare’s professional oncology social workers, who can help address women’s concerns about an ovarian cancer diagnosis and identify resources to ensure they receive the best care possible

Ovarian cancer is the eighth most common cancer among U.S. women. This year, approximately 22,000 women will be diagnosed, and nearly 15,000 will lose their lives to the disease, according to the National Cancer Institute.

If you or someone you know has been diagnosed with ovarian cancer, call the Hope Line at 877-OV-HOPE-1 (877-684-6731). The line operates Monday-Thursday, 9 a.m. to 7 p.m., and Friday, 9 a.m. to 5 p.m. ET.

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