Many Caregivers Stressed, Says Study; Help is Available

December 30, 2009

caregiverpicA recent study conducted by the National Alliance for Caregiving and AARP found that nearly one in three Americans is a caregiver for a loved one. A majority of caregivers are female (66%) and the average age is 48 years old. Caregivers provide 20 hours on average of care per week and the average duration of caregiving lasts 4.6 years. The study also found that there is a substantial increase in the number of caregivers today as compared to 5 years ago (44.4 million vs. 65.7 million). Cancer was reported as one of the main reasons people need care and 31% of those who responded said that they were highly stressed by caregiving.

The good news is that caregivers are receiving more assistance than they were 5 years ago. This is important because 1 in 6 caregivers reported that providing care to a loved one negatively impacted their own health.

To support those caregiving for a loved one with cancer, CancerCare provides Caregiver Support Services, including counseling, support groups (including online), educational workshops and publications.

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New Survey Highlights Financial Impact on Cancer Patients, Caregivers

December 21, 2009

According to new survey results from the Association of Oncology Social Work (AOSW), more than half of cancer patients reported that the costs related to cancer negatively impact their ability to focus on their recovery. Experiencing financial strain can also affect how the patient makes treatment decisions.

Other key findings include:
68% reported financial hardship due to medical bills
46% had to cut back on living expenses to pay for their treatment
40% said that they depleted their savings
30% reported having to deal with bill collectors
66% of patients who faced major financial challenges report suffering from depression/anxiety

These findings reinforce the need for patients and their loved ones to seek guidance and support. While patients reported experiencing significant stress, only 1/3 sought out the help of a social worker. It’s important to know that there are professionals who are experienced in navigating care systems and who can provide supportive counseling.

To speak with an oncology social worker, contact us at 1-800-813-4673.

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Pfizer Extends Free Meds Program for People Who’ve Lost Their Jobs

December 15, 2009

Pfizer Inc. announced last week that it will extend through 2010 its program providing free  prescription medications for people who have lost their jobs.

According to the Associated Press, the Pfizer program makes available more than 70 types of widely prescribed medications it manufactures, such as anti-pain drugs and anti-depressants. The program helps people who have lost jobs since Jan. 1, 2009 and have been taking the drug for three months or more.

Visit the Pfizer website for more information about the program and the medications offered. For more information about specific chemotherapy drugs available through Pfizer’s patient assistance program, call 866-706-2400.

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Coping with Hair Loss from Chemotherapy

December 14, 2009

In a recent posting to the New York Times health blog “Well,” oncology nurse Theresa Brown relates her experiences in helping two patients shave their heads when the gradual hair loss from chemotherapy became intolerable.

The stories she shares reveal, in her words, “how difficult it can be to lose your hair as a by-product of saving your own life.” Of course, each patient reacts to treatment-related hair loss in their own personal way, as reader’s comments on the blog illustrate:

“I had chemo last year and loved being bald. My son and I went together to have our heads shaved and our local paper made a video of it,” says one woman. Another writes, “I lost my hair twice due to different treatment regimens and each time there were emotions associated that I did not expect.”

CancerCare social workers offer the following tips to individuals coping with hair loss:

  • Buy a wig before all of your hair falls out. This way, you will have a good match to your own hair color.
  • Get a professional fitting. There are full-service wig salons that fit and style wigs.
  • Find out if your health insurance company covers the cost of wigs. If so, remember to save your receipt.

For additional tips, read CancerCare’s fact sheet, “Tips for Managing Hair Loss.”

One commentator to the “Well” blog offers the following helpful advice to parents with cancer who are contemplating going bald:

“Parents with school aged children should talk to their kids and set expectations with them. Our kids were fine with their Mom being bald AT HOME, but when she was at school they requested that she wear a wig so she would look normal.”

Do you have some tips of your own? We invite you to share them with our readers by leaving a comment on this page.

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1000 Cranes of Hope

December 14, 2009

The ancient Japanese tradition of senbazuru promises that a person who folds 1000 origami cranes will be granted a wish, such as long life or recovery from illness.

Boston-based Millennium Pharmaceuticals, owned by the Japanese pharmaceutical, The Takeda Company, recently launched a website honoring the senbazuru tradition, where people facing cancer–patients, caregivers, loved ones–can express their hopes and wishes for the New Year. Each message of hope posted at the site is represented by a bird-shaped paper figurine.

 Millennium Pharmaceuticals is a funder of CancerCare’s Door to Door program, which provides financial assistance to cover transportation costs for people undergoing treatment for multiple myeloma.

Leave your wish at 1000 Cranes of Hope.com (the site is free but log-in registration is required). For every wish left at the site, Millennium will make a donation to a healthcare-related charity.

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